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Empire Justice Center
The Empire Justice Center's mission is to protect and strengthen the legal rights of people in New York State who are disabled, poor, or disenfranchised through high quality individual and systems change advocacy.
Aspire Hope NY
AspireHope NY, Inc. delivers independent peer services and other supports to individuals and their families to achieve wellness and develop natural supports.
New Directions Youth and Family Services
A family support coordinator (FSC) works with families of children having an emotional, behavioral, or socially handicapping condition. The FSC oversees the provision of three support groups for parents and provides support, advocacy, educational resources, and information regarding special education services. This program is funded by the New York State and Niagara County Offices of Mental Health.
New York Yellow Pages for Kids with Disabilities
A resource directory assisting with finding educational consultants, psychologists, educational diagnosticians, and health care providers among others.
The goal of Starbridge is to deliver consumer-driven services including information sharing, individual advocacy support, service coordination, and educational workshops to support people with disabilities and their families.
Families Together in New York State: Western Region Family Services Directory
A resource directory assisting families with finding services, advocacy, and information.
Legal Aid Society of Rochester, Education Law Unit
The attorneys and advocates of the Education Law Unit support children from birth to 21 years old in Genesee, Livingston, Monroe, Ontario, Orleans, and Wayne Counties. Assistance is available to youth and their families, at no cost, in a variety of education-related circumstances.
A national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities
Parents Have the Power to Make Special Education Work by Written by parents who have been through the US special education system, this book cuts through the jargon to provide other parents with a no-nonsense road map full of valuable first-hand insights and tried-and-tested advice. The authors clearly describe: #65533; the special education process, including the school hierarchies parents are likely to encounter and etiquette to be aware of when dealing with school personnel #65533; the information parents should expect to see in school evaluations and Individualized Education Programs (IEPs), and what to do when this information is missing or insufficient #65533; problems parents may encounter when the needs of the school conflict with the needs of a child, including how to deal with such situations and when to seek legal advice #65533; the importance of organizing special education documentation and establishing a 'paper trail', and how to begin this process #65533; why transition planning is so important, and transition services parents may want to consider for their child. Demonstrating that parents really do have the power to make special education work for their child, this empowering guide is essential reading for parents of children with disabilities who are new to the special education system in the US, as well as those who feel frustrated with the system.
Publication Date: 2013-12-21
Publication Date: 2009-10-01
Wrightslaw by Wrightslaw: From Emotions to Advocacy, second edition will teach you how to plan, prepare, organize and get quality special education services. In this comprehensive, easy-to-read book, you will learn your child's disability and educational needs, how to create a simple method for organizing your child's file and devising a master plan for your child's special education. You will understand parent-school conflict, how to create paper trails and effective letter writing. This book includes dozens of worksheets, forms and sample letters that you can tailor to your needs. Whether you are new to special education or an experienced advocate this book will provide a clear roadmap to effective advocacy for your child. You will use this book again and again.
Publication Date: 2006-01-01
Parent's Guide to Special Education by Be your child's best advocate! Children with special needs who succeed in school have one thing in common--their parents are passionate and effective advocates. It's not an easy job, but with The Everything Parent's Guide to Special Education, you will learn how to evaluate, prepare, organize, and get quality services, no matter what your child's disability. This valuable handbook gives you the tools you need to navigate the complex world of special education and services, with information on: Assessment and evaluation Educational needs for different disabilities, including multiple disabilities Current law, including the Individuals with Disabilities Education Act (IDEA) Working within the school system to create an IEP The importance of keeping detailed records Dealing with parent-school conflict With worksheets, forms, and sample documents and letters, you can be assured that you'll have all you need to help your child thrive--in school and in life!
Publication Date: 2014-05-18
Parenting Your Complex Child by Besides the usual parenting challenges, parents of disabled children face added obstacles that can tax the resolve and resources of even the strongest families. The author has developed a powerful system for obtaining dramatically better care for children with one or more serious disabilities. Parenting Your Complex Child reflects the experience and knowledge she has gained through decades of navigating a sea ofcomplex medical, educational, occupational, and social issues while working with disabled clients and with her own son. Morgan's unique tracking and documentation tools let parents adapt to their child's challenges, create routines that support the child's needs, communicate those needs to busy professionals - and be taken seriously by them. The book also helps parents lay the groundwork for care to continue after they themselves can no longer provide it. Compassionate, practical, and proven, Parenting Your Complex Child helps parents ensure that life-changing decisions are based on the best interests of the child - and on the best information available." "
Publication Date: 2006-04-10
UR Medicine | Golisano Children's Hospital
Family Resource Library
1st Floor, Room 1.1177
Phone: (585) 275-7710