Knowing Alex: Life with Agenesis of the Corpus CallosomThis poignant and inspirational memoir, written by Alex and his mother, Cindy, tells how their family came to know the person Alex is, and how they helped him become the person he could be. KNOWING ALEX Life with Agenesis of the Corpus Callosum is a story of love and family, friendship and understanding, perseverance and triumph over adversity.
Aims to “enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum, and raise the profile, understanding and acceptance of these disorders through research, education, advocacy and networking”.
Books for Kids
ACC and Me by Lynn K. Paul; Cindy Mauro Riesenhauser (Illustrator); Kathryn J. SchilmoellerMeet Dexter! A delightful red-haired boy who has ACC. In this short story, Dexter explains what ACC is and tells the reader how having ACC impacts his life.