Understanding Fragile X Syndrome: a Guide for Families and Professionals by Isabel Fernandez CarvajalFragile X syndrome is one of the main causes of child developmental delay and autism spectrum disorders. A premutated form of the same gene is also the basis for neurological disabilities in adults. This book breaks down the complex science of this genetic disorder and provides the facts and advice that every bewildered parent or professional needs to support individuals with Fragile X syndrome.
Publication Date: 2011
Fragile X, Fragile Hope by Elizabeth GriffinElizabeth Griffin's son Zack has fragile X syndrome - the most common known cause of inherited mental impairment - and is among the 20 percent of people with fragile X who have autism. Whether you are a parent of a child with special needs or you struggle with unresolved grief, chronic stress, or depression, Fragile X, Fragile Hope shows without a doubt that you can survive, and more than survive, you can find your way back to a joy-filled life.
Publication Date: 2004-11-01
Becoming Mrs. Rogers by Cindi RogersBecoming Mrs. Rogers is the true and heart-felt story of one couple's journey into acceptance following a devastating genetic diagnosis for both of their sons. Their story, its highs and lows entwined with its wisdom and compassion, has become a beacon of hope for thousands of families struggling with fragile X and other autism spectrum disorders.Fragile X is a common and inherited cause of learning difficulties, affecting a child's entire world, including social and behavioral problems as well as cognition and speech. Cindi Rogers not only tells her story, but also gives advice for new parents, sharing fact, such as: * the impact of Fragile X on the family* therapeutic methods for a Fragile X child* specific methods used in teaching individuals with Fragile X* the behavioral and physical characteristics of Fragile XRogers and her husband, Chris, share the perspectives and tools they embraced in order to help their boys be as happy and independent as they can possibly be. It is a story of challenges, tears, joy and hope.
Has developed guidelines on medical, educational, behavioral, and social treatments for individuals with fragile X that may help families and professionals assure the best care.
Books for Kids
Fragile X Fred by Julia Bassell; Jayne Weber; Jeannie Visootsak; Jordana Roteman Slawin (Illustrator)Look around you. Every person you meet has been molded by an intertwining of genetic information and personal experience. Fragile X syndrome is a genetic disorder that is not widely understood. This book aims to help people of all ages understand that although individuals with fragile X syndrome do have certain challenges, these challenges do not define them. This book is a valuable tool for educators, siblings, parents, and children with fragile X syndrome.