Skip to Main Content
It looks like you're using Internet Explorer 11 or older. This website works best with modern browsers such as the latest versions of Chrome, Firefox, Safari, and Edge. If you continue with this browser, you may see unexpected results.
Children with Spina Bifida by
Focuses on specific issues, such as: causes of spina bifida; prenatal diagnosis; neurosurgery; urological and bowel management; orthopaedic concerns; physical therapy; common medical problems; and day-to-day parenting issues. This book also features a resource guide, glossary of terms, and many photographs of children with spina bifida.
Publication Date: 2007-11-01
Living with Spina Bifida by
It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition. Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.
Publication Date: 2004-03-15
Yes There Is Hope by
On July 5, 2004, Deangelo McCormick was born with the most common birth defect in the United States, Spina Bifida. Spina Bifida is a complex neural tube defect that requires lifelong observation and management with the help of a team of doctors. Although Kenida was devastated that her child was born with this disability, she did not allow it to consume her family and steal the prosperous life, destined for her son.Yes There Is Hope - A Parent's Guide To The World Of Spina Bifida was written as a result of Kenida's experience in caring for Deangelo. It provides an in-depth look at the disability and is an extensive source of information for families to provide a safe and loving home for a child with Spina Bifida.
Publication Date: 2017-04-27
The Special Needs Planning Guide by
Developed by two financial planning experts who also have family members with special needs, this one-of-a-kind book is an absolute must-have as parents and other caregivers plan for the lasting financial security of their families. Transforming the financial planning presentations theyâe(tm)ve given to families across the country into a thorough, easy-to-read resource, the well-known authors give parents a chronological guide for each stage from birth to adulthood. Parents will get comprehensive advice and strategies on how to address financial factors--including mortgages and other expenses, insurance policies, investments, and savings legal factors--such as conducting estate planning, weighing guardianship with less restrictive alternatives, and creating a Special Needs Trust to ensure a child's future government factors--identifying and supplementing government benefits, such as residential services, supported employment, and respite care family and support factors--such as the familyâe(tm)s values, the parentsâe(tm) careers, sibling considerations, and contributions of extended family members emotional factors--such as dealing with both positive and negative feelings, staying connected with others, and using strong emotions to fuel advocacy Included are all the tools families need to create an effective action plan for their finances: planning checklists and forms, a helpful glossary of financial terms, âeoeplanning pointersâe#157; that help readers remember key points, and extended case studies dramatizing other familiesâe(tm) evolving challenges and solutions. Plus, the CD-ROM in the back of the book contains a helpful Financial Planning Timeline and a printable Letter of Intent that lets parents communicate key information, concerns, and desires to future caretakers. A book parents will use for the rest of their lives, this guide is also a necessary addition to the reference library of every service provider.
Publication Date: 2007-04-27
Books for Kids
What Can You Do? by
Megan, a young girl with Spina Bifida tries to make a new friend by telling her all the ways that they can play together. The book helps introduce young children to other kids with special needs. This book has been designed for young children just starting to read and introducing them to other kids with disablities or their own.
Publication Date: 2010-05-31
Right Under My Nose
An interactive, printable book that helps children with spina bifida understand their condition, discover new ways to enrich their lives, and help their parents and caregivers answer many of the tough questions that arise.
Who Will Hold the Lemonade? by
Publication Date: 2011-01-01
Blueberry Lu by
Exciting new children's author. Enjoy refreshing and exciting books about children with special needs, presented in a very subtle manner. Lucy loves blueberries! She especially loves blueberries when they are frozen! However, the colder the berries, the more risky for Lucy's friends and family. Come with us to discover what happens when Blueberry Lu eats her cold berries.
Publication Date: 2015-04-01
Katie CAN Do... and You CAN Too! by
When the Hull family was blessed with the gift of a new baby on the way, the family was ecstatic. What could make the lovely, young married couple any happier than the new addition of a baby? The Hulls' elation turned to concern when they discovered their baby would have a neurological defect called Spina Bifida, and this defect would result in a life-long disability.The couple bravely accepted the challenge and kept their attitudes positive, despite some of the less than encouraging comments they heard. Their little girl was born beautiful and strong; she would retain this strength of sweet spirit and it would later serve her magnificently. The Hulls never looked back.Katie has had her good days and her not-so-good days, but throughout her challenges, she has kept that strength going strong. Katie wrote her first book, Katie CAN do...and you CAN too!, to share her courage with others in the hope that she might inspire children and adults, with and without disabilities, to move ahead with their goals and dreams no matter what-because Katie can and so can you.Katie's unique perspective as a child living and thriving under a set of physical challenges lends tremendous credence and inspiration to her call to act. Whether or not you have a physical, mental, or internal challenge to overcome, you can read Katie's words, learn from her, and gain a boost to your spirit. There is nothing that holds you back, except yourself.Katie generously shares what she has experienced and learned from surgeries, as well as about learning how to use a walker, crutches, and other adaptive equipment. Katie's approach teaches all readers how effective a positive, don't-take-no-for-an-answer attitude can be. Katie CAN do...and you CAN too! kindly educates the reader all about Spina Bifida, all while sharing Katie's inspiring triumphs in racing, pageants, and more.
Publication Date: 2013-09-16
Sarah Joy by
Publication Date: 2013-11-01
UR Medicine | Golisano Children's Hospital
Family Resource Library
1st Floor, Room 1.1177
Phone: (585) 275-7710