Understanding Rett Syndrome by
Rett Syndrome is a severe neurological disorder whose cause is presently unknown. It leads to a variety of problems, often involving mental retardation, serious motor handicaps, epileptic seizures, and difficulties with communication. This syndrome is found only in girls, and it usually becomes noticeable during their second year of life. The disorder is estimated to occur in one out of every 10,000 female births worldwide, but as the characteristics of the problem are becoming more widely known, new cases are being reported at an increasing rate. This is the first book on Rett Syndrome. The attempt here is to explain the problem and the implications for the individuals involved, their parents, teachers, and others who work with them. Because there is no cure yet, medical science presently has little help to offer the families involved, although research is proceeding vigorously. Many practical insights and techniques are offered for those working with this problem.
Shauna by
This book is an adaptation of a poem written by the author when he was 16 years old. He was inspired by his sister Shauna, who was born with Rhett's Syndrome. Unable to speak or walk on her own, the gift of Shauna's life and her family's love for her continues to encourage and bless many.
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Robin Lacagnina, MLS
Pediatrics & Family Resource Library UR Medicine | Golisano Children's Hospital
Mucci Family Resource Library 1st Floor Lobby, Room 1.1156 Phone: (585) 275-7710 |
